Monday, May 9, 2011

I was asked anonymously today if I worked out

I finally had some time to sit back and think of a proper response to this rather than people asking me while I check them out (as a cashier!) and focus primarily on getting them through line and not my answer.
Here's my post:

do you lift weights or something?

your arms are quite strong looking.
Anonymous
 
I don't actually. I am very very very toned and that's due to a a very rare genetic disorder I have. It's called lipodistrophy. About 1 in 3 million people have it. I've been coming more and more to terms with it. I hated looking the way I do. Being confused for as a man or constantly being asked if I was a crossdresser. But I've grown to love myself. Here's a photo of my arms and legs that I literally JUST took:
My obliques, pectorals, lower back, glutes, and quads are all the same way. The way the disorder works is  that it takes the fats in my body and either burns them or puts them all in specific places rather than just around. My fats ONLY go to my face, neck, upper back, and inside my liver. So if you notice from pictures, my face is actually quite round a slightly chubby and you may notice a double chin if I don't hide it correctly. My upper back is definitely fatty, but not so much as to give me a hump back such as others who have my disorder are unfortunate enough to get. I have about 7% body fat. So when internet trolls try and call me fat... I honestly know that I am not... in that sense anyways. Actually, if you "google" "Mackenzie Dunn"... that's me... you will see this photo as one of the first photos on there:
This photo captures the trues essence of my disorder. Look at my face. Completely chubby including a double chin. But the rest of my body is insanely fit.
The reason you can find me on google search so easily is that I hold 7 state track records in the state of Nevada and am slightly famous to the high school sports world when it involves Western (specifically Nevada, but other states are aware of me as well) schools.
Through track, I have been tested for steroids, other drug abuse, observed on my daily routines as in work outs (in which I've never worked out a day in my life), and I've also been test to prove if I was the correct sex I claimed to be.
Did you know that some people who appear to be female, can actually be a hermaphrodite? The testicles actually are lodged deep within the vagina of the hermaphrodite. They are usually up close to where the ovaries may be. Did you know that a doctor's finger is the only cheap and less hectic way to determine if you have so question testicles or not? Because I sure do. I was 12. I am 100% female.
You may ask how I know so much about this disease if it's so rare. Well, my aunts on my father's side called me up when I was about 16. They have what I have as well except my case is much more dominant than what they appear to have. They found... or perhaps the doctors found them... but as is, these special doctors from Dallas, Texas who study at the Southwestern University of Texas got a hold of me through my aunts and pay for me to fly down from Northern Nevada every three months so they can study me. I would lie in a hospital bed for about three weeks as they drained blood out of me and ran all sorts of tests on me. I would encounter numerous MRI's and other torturous tests such as water submersion in which they collect my weight under water... I can't swim nor hold my head underwater without plugging my nose without choking. This is due to me drowning three times in my life and growing a severe fear of water... but anyways... they would fly me down every three months for two years. So I learned quite a bit about it. There's still so many unanswered questions. I did learn that I can never take birth control (other than condoms and whatnot). I have a high testosterone level and when we first were trying to figure out things, most hormone specialists were like, "GET THAT GIRL SOME ESTROGEN!" Only later, did I find out that estrogen is lethal to me. Estrogen produces fats. When your body is given estrogen in which your body is not creating... your body accepts the unknown fats as their own. My body would send those fats straight to my liver and shorten my life than what already is. Note* My life actually isn't shortened by much. My life expectancy is till about 60 or so before I die of diabetes complications. That's what the fats do. They cause diabetes. Untreatable diabetes. Even through diet and insulin shots, but it's a very slow ride. So I'm not allowed to have estrogen. I have a period only once every two years. This may sound really nice and trust me, I don't take it for granted... but a period is very good for the woman's body. I'm missing out on vital things that need to be done when a period occurs. Not only that, I'll never know when I miss a period. I say once every two years, but that is an estimate. To be honest... it occurs pretty much whenever the hell it feels like it and my periods often last three months or one day. Never anymore than one day or less than three months... however they have lasted longer than three months. Because of my high testosterone level as well, I grow facial hair. Luckily nothing like a full mustache or beard, but it is noticeable scruff under my chin if I don't have my biweekly waxing. Because of the lack of period and the possibility of rare ovulation, I don't think I can bear children either, but that's just my own assumption.
On top of EVERYTHING in which I just told you, I have a 3 inch achilis tenant. While you and most of all your friends have a 6 inch achilis tenant to hold up your regular sized leg muscles... my 3 inches are fighting so hard to hold everything I have against it. They're on the verge of snapping. I've been in physical therapy since I was 7 years old... constantly stretching and working with my legs. When I first joined physical therapy, they gave me these boots I had to wear at night. They straightened my feet out. They hurt so badly. Now you try to convince a 7 year old to keep these horrible pain delivering contraptions strapped to their feet and tell them to go to sleep and not to push the simple little button that will release the straps and she can sleep freely without pain. As it goes to say, I never slept with them on.
Because of track, however, I was able to stay in physical therapy for free because they took care of the sports teams as their donation to the school. I've been in track since I was 12. So we only paid 5 years of physical therapy.
I still fight with my legs every day to not buckle underneath me when I get out of bed. You may have experience shinsplints in your life. I experience them every second of every day to where they really don't bother me anymore. I suffer from softball size cramps on the ball of my calf or more often on the ball of my feet, which hurts 1000 times more. When I get shinsplints ON TOP of my shinsplints, I'm brought to tears. Which actually is a hard thing to do on a physical level and a personal emotional level. I'll cry if someone's cat gets run over, but if you hurt my feelings, you often won't see it. People can pinch me until I bleed and I won't feel a thing. So you must imagine the immense amount of pain that I go through daily.
I'm not trying to make this a pity post about me, I'm simply posting the complete and utter truth about my disorder and how it effects me. It effects my life almost every day on so many different levels. To have a coach from another team scream at your face that you're a "fucking liar. You're not a fucking girl. There's no way. I swear she has a penis." and to have people constantly ask you how you have the confidence to go around such a small town as this dressed in drag, but always add that I pull it off so great that it's really hard to tell.... listening to all of this while my "strong" legs are weakening and can barely hold me up throughout the day, but when I race and see the faces on all those people who are shocked to hell how toned and how fast I am...
I honestly will never be able to truly explain my life to you in words or in writing and you'll never truly be able to understand, but that goes for you too. I probably will never be able to understand your life either despite how simple or extraordinaire it may be.
 

1 comment:

  1. This photo that I used, the last one. I did everything in my power to destroy it. I hated it so, I'm still not very satisfied with it, but it proves a very valid point. This just goes to show how powerful the internet is. It's on google search now. I cannot delete it.

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